tag:blogger.com,1999:blog-7572070976923021388.post4884592495346787015..comments2023-10-28T04:05:57.073-07:00Comments on Hartley's Life With 3 Boys: How Did You Know it Wasn't Just SPD?Hartleyhttp://www.blogger.com/profile/02463016780946119637noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-7572070976923021388.post-38632225552361333272012-08-23T23:41:21.062-07:002012-08-23T23:41:21.062-07:00Great blog & awesome post. I have often wonde...Great blog & awesome post. I have often wondered if my 5 year old has something, but I don't know what. She is currently in O.T. Initiallt brought in for fine motor skills & food issues, but discovered all that kinda fell into some sensory issues and I am wondering if it's SPD. I don't know where to start. My doctor says she is too young to diagnose & she believes she may grow out of it. I am not so sure myself. I think some things are progressively getting worse or perhaps more noticible. She had a hard time in Pre-K where her teacher openly said she thought it might be Autism but it wasn't. We tried to work with the district to no avail. She constantly got in trouble, got sent to the principal's office and came out crying from school feeling sorry for herself. I have cried so much and still do cause all I want is to<br />Help my little girl. I want to understand her & her world. Unknownhttps://www.blogger.com/profile/13099720976125649021noreply@blogger.comtag:blogger.com,1999:blog-7572070976923021388.post-36416813217007577382012-02-20T21:49:03.027-08:002012-02-20T21:49:03.027-08:00I am glad I came across this blog. I have been ha...I am glad I came across this blog. I have been having major issues with my 10 year old daughter to point she is starting be really unsafe. I am going to be checking into getting her tested for more then the SPD because she is so angry to the point nothing is helping anymore. <br /><br />http://findinggodspeace.wordpress.com/Unknownhttps://www.blogger.com/profile/13660532213441966284noreply@blogger.comtag:blogger.com,1999:blog-7572070976923021388.post-21782355385300344992012-01-10T23:34:41.530-08:002012-01-10T23:34:41.530-08:00Oh my goodness. Would it be terrible for me to sa...Oh my goodness. Would it be terrible for me to say that I am very excited to read this post? I can't help it. I doubt you remember me, but I posted to a contest you had giving away your son's book. You sent me an email and we live close. My son is seven and has been diagnosed with severe anxiety and OCD. The psychiatrist says that he is too young to diagnose with schizophrenia, but he think it's probable. He says his reactions to his medications is "telling". This is a frighting and frustrating world and I often feel like there is nobody else out there who is going through the same kind of challenges I am. I don't know what made me decide to look at your blog today, but I am so glad I did.Laurahttps://www.blogger.com/profile/16193052003437755292noreply@blogger.comtag:blogger.com,1999:blog-7572070976923021388.post-40215199549531808662011-12-20T13:42:42.945-08:002011-12-20T13:42:42.945-08:00Reading this post and all the comments has left me...Reading this post and all the comments has left me a bit overwhelmed. <br /><br />My husband and I adopted a beautiful baby girl from the foster system and from the beginning we knew that we would face struggles as she was born addicted to Cocaine, marijuana and barbiturates. Kailey has seen multiple therapists, doctors and now just recently a Functional neurologist. Each doctor has told us different things. We know that Kailey has SPD and we are seeing signs of ADHD but because she is 3.5 we have been told that there really isn't a test that we can take until she is 6. So we are investigating ADHD but now I am reading all these other acronyms and I am feeling a bit overwhelmed.<br /><br />I have never heard of these names and I can see have have more to investigate. Where do I start?<br /><br />http://caringforkailey.wordpress.comAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7572070976923021388.post-61510103075213437082011-12-19T14:02:13.388-08:002011-12-19T14:02:13.388-08:00Great article. I love reading your blog as I can r...Great article. I love reading your blog as I can relate to your story. I didn't find out what was going on with my son until he was 8 years old and some pretty traumatic episodes at school. He was dx'd first with ADHD which made his behavior worse. Then he did start having serious anxiety, and mostly in the form of separating. He does not transition well so his PPD-NOS more of a later onset that was more noticeable as he got older. We were then told Bipolar NOS but I never felt this was right. I also brought him to a peds nuerologist which did diagnosis him PPD-NOS and his new psychiatrist came to the same conclusion. <br /><br />We have SPD, PPD-NOS, OCD, and GAD. I leave out the OCD often and just concentrate on the anxiety and SPD aspects. He has been on risperidal which has helped his anger issues. He no longer wants to hurt himself but he still picks at sores or cuts which makes them worse. He loves to pick at his chapped lips during winter. Luckily we don't have much a winter here in the deep south. Anxiety is his biggest battle and Zoloft has helped him tremendously. Sorry for rambling but I started my own to help advocate for Robbie and tell his story. I think the more we understand mental illness, the better we can understand individuals who live with it.Anonymoushttps://www.blogger.com/profile/16193432599135463879noreply@blogger.comtag:blogger.com,1999:blog-7572070976923021388.post-77765219152317883002011-12-13T18:25:05.589-08:002011-12-13T18:25:05.589-08:00Wow, my son has the same DXs as yours. - even down...Wow, my son has the same DXs as yours. - even down to not typical bipolar, but the mood disorder because he has no mania and can sleep at night. As your other comment suggested, it is good to know other parents are not alone. But also, it is good for our kids to know THEY are not alone either. My son is filled with such self-loathing after a rage, it's heartbreaking. He insists that he's the only "bad kid" being mean to their mom. I wish there was a kids' blog--hey maybe we'll start one! Where kids with his issues can talk it out with others. Hmmm--got me thinking! Thanks!Elizahttps://www.blogger.com/profile/15741143452893570661noreply@blogger.comtag:blogger.com,1999:blog-7572070976923021388.post-43969752344069129852011-12-10T09:35:27.954-08:002011-12-10T09:35:27.954-08:00Summye, I love your comment! Taking care of yours...Summye, I love your comment! Taking care of yourself is so important. My oldest son has SPD and autism and my daughter has SPD. Now my toddler is exhibiting troubling behaviors and my mom wants to know when I'm going to take him in. Right now, I just don't feel like I can handle it, so I'm taking a couple months. In the meantime, we are working with all of our kids, but I need to regroup before I can face another Dx. Thanks for the validation.<br /><br />And maybe your advice will help me start taking care of my own health. Here's hoping....Patty O.https://www.blogger.com/profile/15598358666714482323noreply@blogger.comtag:blogger.com,1999:blog-7572070976923021388.post-71267054254783971902011-12-01T10:04:03.503-08:002011-12-01T10:04:03.503-08:00Hartley-
I just saw that you re-posted this and th...Hartley-<br />I just saw that you re-posted this and thought that I would comment. I am the one who wrote the original letter to Hartley prompting the original post in April. Hartley's letter back to me helped me and I hope this post helps others as well.<br />In April I knew that we would eventually have to keep looking to figure out what was going on, but emotionally at the time I just couldn't handle any more. What I did do was stop hyper-focusing on it and did something for myself. I joined a club and lost 25lbs,meet new friends, and changed my outlook. <br />In November my child's teacher, pediatrician, father and OT all expressed more concerns and we have once again started the diagnosis process again. We get the results next week, but I am OK with it now. By first taking care of me, I feel more equipped to deal with whatever comes our way.<br /><br />Thanks for all your support Hartley!Summyehttps://www.blogger.com/profile/13333569936048758808noreply@blogger.comtag:blogger.com,1999:blog-7572070976923021388.post-38810709463728265462011-11-28T15:37:54.051-08:002011-11-28T15:37:54.051-08:00Wow Chrisa - I often wonder if we are on the same ...Wow Chrisa - I often wonder if we are on the same path...scary to think. Thank you for commenting and sharing - it is so important for families and parents to know they are NOT ALONE!<br /><br />HartleyHartleyhttps://www.blogger.com/profile/02463016780946119637noreply@blogger.comtag:blogger.com,1999:blog-7572070976923021388.post-3795981684944440362011-11-28T14:13:33.757-08:002011-11-28T14:13:33.757-08:00I also often tell parents that task that we cycled...I also often tell parents that task that we cycled through SPD, PDD-NOS, Mood Disorder NOS, BP NOS, BP1, BP1 with psychotic features, Schizoaffective Disorder Bipolar Type, and now, at age 17, we are looking at straight schizophrenia. <br /><br />The hard part is that all these symptoms overlap. Until your child is done developing, treat the symptoms. Don't worry about the diagnosis so much.Anonymoushttps://www.blogger.com/profile/12677215411458219112noreply@blogger.com