Showing posts with label Humor. Show all posts
Showing posts with label Humor. Show all posts

The 12 Days of Christmas -- SPD Version


12 Days of Christmas -- SPD Version


On the first day of Christmas,
SPD gave to me
A meltdown Oscar worthy!

On the second day of Christmas,
SPD gave to me
Two heavy blankets,
And a meltdown Oscar worthy!

On the third day of Christmas,
SPD gave to me
Three screaming boys,
Two heavy blankets,
And a meltdown Oscar worthy!

On the fourth day of Christmas,
SPD gave to me
Four spinning Egg Chairs,
Three screaming boys,
Two heavy blankets,
And a meltdown Oscar worthy!

On the fifth day of Christmas,
SPD gave to me
A five hour migraine,
Four spinning Egg Chairs,
Three screaming boys,
Two heavy blankets,
And a meltdown Oscar worthy!

T'was the Night Before an SPD Christmas














T’was the Night Before an SPD Christmas
By Patty, her husband and Hartley


T'was the night before Christmas, when all through the house
Not a creature was stirring, not even a mouse;
The snack packs, arranged on the counter with care,
In hopes, on our journey we’d be well prepared.
The children were nestled all snug in their beds,
While visions of Chex Mix danced in their heads;


Ma in her hoodie, and I in my sweats,
were to put away pillows and therapy nets.
When in the back room there arose such a clatter,
I ran at full sprint to see what was the matter.
When, what to my wondering eyes should appear,
But a puzzled old man buried up to his ears,
(In scooter boards, swings, and small colored spheres.)
Poor devil had brushed ‘gainst our therapy stash,
When it came down around him it made such a crash!


He recovered with grace, so lively and quick,
That I knew in a moment it must be St. Nick.
"What is all this stuff that you people collect?
Are you Circus performers?”--the old man interjects—
“I came here with toys, for the boys and your girl
But looking around I think ‘what in the world?’


This room that would normally have children’s stuff
Is packed to the gills with equipment enough
To start your own CIA torturing session!
Tell me I’m wrong and you’re not!” (oh good heavens!)


My wife and I snickered and held out our hands,
And reassured Nick we’d had no evil plans.
“Our kids have a condition; they have a hard time—
They yell when it smells and they climb up the blinds.

The 813 Mile Car Trip by Alysia

It’s that time of year again.  Thanksgiving.  It’s a tradition in my family that we all go to my mother’s house in Vermont for the holiday.  In the past 30 years, there have only been three times when she didn’t host the big turkey dinner.  Usually, there’s about 30-35 people there – my immediate family, aunts, uncles, cousins, second cousins, friends of second cousins…you have a connection to our family and you’re welcome at the house. 

Making 250 mile car trip is always somewhat of an adventure for us.  It’s hard for any kid to sit that long, but a four year old with sensory issues can make the car ride incredibly hard.  One year, he asked for a “hug” for an hour straight.  Factor in food breaks, toilet breaks, coffee breaks and sensory breaks and a four hour ride can sometimes turn into six.   Oh yeah, and diaper changing breaks for the two year old too.

Leaving the comforts of our house is somewhat of a challenge.  Besides my son’s sensory issues, he has a food intolerance to all products with corn in them (corn syrup, corn starch, dextrose, etc.) so we travel with our own food.  Additionally, my husband is a vegan so we need to make sure we have things that he can eat as well.  All this makes eating anywhere but home a little dicey. 

However, we’ve made the trip enough now that I know what to do ahead of time to get us ready, and what to pack to make the journey successful.  I thought I’d share our packing list with you, in case you are also getting ready for a big holiday adventure.  I’ve based our list on the car game “I’m packing my grandmother’s trunk and I’m bringing…” something based on each letter of the alphabet. 

Dinner with a "3C Kid"

I do know why we thought that going out to dinner at a real sit down restaurant was a good idea; I was bored.  You see, we spent all day Saturday at home cooped up in the house because the weather was rainy and miserable.  We did a ton; spent two hours on a game of Star Wars Monopoly, an hour building and playing GeoTrax, way too long watching TV and we had snacked on everything in the house -- so it wasn't like we hadn't done anything, but I was super bored.  Me.  I was bored.

So my hubby suggested we all go out to dinner and that we invite my parents to meet us.

We agreed on the Olive Garden, half way between our house and my parent's house, and off we went.

I was nervous.  I mean, we DON'T take the boys to restaurants all together.  Nick only eats peanut butter (really) and Matthew isn't much better (Matt doesn't even eat fast food except the occasional chicken nugget at McDonald's -- so this is a challenge).

Add to that it is 6pm at night when we decide this, and that Gabe is accustomed to eating at exactly 6pm (he is obsessed with food in the literal sense), so he would have to wait, most likely in a crowded restaurant, stay calm while I entertained Matthew to keep him in his seat.

I looked up the menu online and it said that the Olive Garden serves Pizza.  Sold.  Nick and Matt could at least order that -- whether or not they ate it is an entirely different story.

So, we were off to the Olive Garden.

And the challenges started in the over-crowded waiting room during our 20+ minute wait.

I had prepped all three with the iPhone app from Model Me Kids that shows the boy going to dinner and 'waiting calmly' for his food while driving there in the van (my hubby drove, I turned around backwards and played the app for them; didn't want you to think I was doing both).  They boys all nodded in agreement and when asked how they were supposed to wait, they echoed the short clip by saying "Calmly." 

While waiting for our table, we were given one of those buzzers -- that doesn't actually buzz -- but lights up when your table is ready. We were two feet from the reception desk, but nonetheless, we got the buzzer.

And Nick and Gabe could NOT take turns holding it.

They were insistent on keeping it (*cough* Gabe), and my mom and dad were doing an awesome job (as usual) making it into a game of sorts so that there weren't any meltdowns.

But Gabe was feeling inflexible on the matter.

At Nick's suggestion, I turned the buzzer over in Gabe's hand so the part that lights up would be visible, which didn't go well -- It was met with grunting and Gabe dropping to the ground in protest.

Sensational Links

Sensational Links for 8/27/10

She Hates What I Do - Thanks Pal by SPD college student Maggie at Runaway Maggie May:  A great post about her friend's comment that perhaps Maggie was using her ADHD as an "excuse" to make school easier for her. 

The Things We Do For Our Kids by SPD mom Michelle at She's Always Write:  The arrival of the first non-family birthday party invitation -- and the party is at Chuck E. Cheese. 

Two Big Boys by SPD mom Kirsten at No We're Not There Yet:  Reaching the milestone of the last child officially potty trained!

Rollercoaster by SPD mom Jaimee at Our Life With SPD:  A recount of her six year old's meltdowns and challenges during the second week back to school.

Oh, Yes He Did

I haven’t blogged about Matthew’s antics in awhile and was worried that maybe I would forget all of the chaos he creates on a daily basis – so I am dedicating this post to his unique aptitudes. (Sounds better that “jackass behavior”).

Matthew spends most weeks on learning how to master a new skill. I think some of you are already thinking, “Oh, how nice.” But really, these aren’t the kind of skills you want your kid to learn; we are not talking about cleaning up toys, making beds or trying new foods. We are talking about Matthew’s little Engineer-In-The-Making brain that is wired to solve any mechanical dilemma. The primary focus these days is to first determine how things work – in order to apply those scientific principles to other more mundane tasks. Or at least that is what I like to think he is doing . . .

May/June found Matthew interested in the power and function of water. This little obsession has historically been focused on the hose, what you can spray, how far it goes, how much pressure is required, and of course, the need to turn it on and off repeatedly at will.

But, since every year spring brings new life, this year, spring brought new life to Matthew’s old water ideas.

He decided that he wanted to see if he could flood the kitchen with water.

Yes, you read that right, he wanted to flood the kitchen intentionally. Just to see what happened.

The Lesson of Proprioception

I often look back on my older posts to see what I was doing last year. I am especially looking for help this time of year when the It's-Almost-Summer-Crazy has a hold of my kids and can't seem to let them go -- they act like I put them in the washing machine on spin cycle. Not that they wouldn't love that, but . . .

How do you solve this? The answer for us is always more propriocpetion.

If the boys won't sleep, or can't sit still at the dinner table (or stand in one spot as the case may be), or are so squirrely in the mornings that we are late to school every day for the last week (was that just us?!), I have to go back to basics: Proprioception.

So, as I was thinking this, and reading old blog posts, I came across this one, and I wanted to share!  It was written the end of May last year, just a day before Gabe's 8th birthday -- so it seemed fitting that the photo here is of Gabe's 9th birthday -- just two weeks ago.

I hope it helps calm your last days of school (or first days of summer!). 

H

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Let them Deliver Pickles

My friend made an analogy using the "Dog Whisperer" today at lunch. It sparked my own reference to a "Cesar Milan" episode I saw the other day. He was putting a dog backpack on this Pit Mix (which I feel my kid sure can act like sometimes) and the only thing he had to fill it with was pickles.

Cesar says, and I am paraphrasing, "When you put the backpack on the dog it gives him a job. He is clearly more focused, because now he isn't just walking, he is delivering the pickles."

But we'll get to how that ties into my day in just a second.

Spreading Awareness

Yesterday I had the great fun of being on Seattle's KOMO 4 News promoting my book, and more importantly Sensory Processing Disorder Awareness.  I could do that every day of my life, and never get tired of it.  It inspires and refreshes me (coming only second to speaking at support groups, or doing Q&A with SPD families!).

When I got on set yesterday, the anchor, Mary Nam, said to me, "I'd never heard of this before!"  Not surprising, but we have to change that. 

So, to remind all of us why we do what we do -- why we blog, why we educate, why we share our story, I am posting my take on what being an SPD Advocate is all about -- with a dash of humor. 

We all are SPD Advocates for our children and all kids with SPD. Spread the word.


What Gets Your Goat?

I think what people fail to understand about being the parent to a special needs child is that it isn’t the ‘child’ that has us exhausted, stressed or just plain worn out, it is scheduling therapy appointments, managing medicine, educating school districts, advocating for extracurricular activities and yes, even running to the pharmacy 4 times a month for medication that puts us over the edge. It would put anyone over the edge.

For some kids, medicine is a fact of life. For Gabriel, since he is Bipolar, it is a requirement of his stability. That means, that it is my job as his mom to make sure he has his meds on time every day.

Now, the part of this that has me worked up today, is that the fact that medicines mean dealing with the pharmacy. And although the people at our pharmacy are nice enough, the whole experience drives me to the edge quicker than virtually any other thing in my life.

Let’s start with the fact that I have to go multiple times a month. Why? Because it isn’t like any of Gabriel’s medicines actually get finished at the same time each month – mostly because they are started at different times, and then changed, or upped or downed, or adjusted in some other crazy fashion to make picking them all up at the same time impossible.

FTF "All Showers Lead to Australia" by Hartley Steiner

Here is May's First Things First article, which was written by me. : )  For more information about First Things First click here.  There is also a list of the previous First Things First articles under the "Favorite Posts Tab" at the top -- with the obvious title of "First Things First Articles". 

As always, please leave your comments below!

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“Do you want to go to Australia with me?” My husband asked casually while I stood at the stove cooking the taco meat for dinner the other night. Such a ridiculous question didn’t warrant an actual verbal response, so I just looked at him out of the corner of my eye and gave a sarcastic smirk. He smiled, and said, “I am being serious. If you and I both start working on it now, we could find someone to take care of the kids for a few days and you could come with me to Australia in June.” He really was serious. And you know what, I wanted to go.

It isn’t going to surprise anyone to find out that spending a week away from our kids is something that we have NEVER done – heck we haven’t even made it 48 hours away from our kids in the last seven years. SEVEN YEARS.

Normally when I get asked by friends or relatives about traveling for an extended period of time, I always say my dream is to ‘be away from my kids long enough to miss them.” And it is true. The kind of stress I am under every single day as a special needs parent is not the kind that dissolves with a 20 minute shower. Not even close. And I spent years using that excuse to justify not spending any time taking care of myself.

But that changed about a year ago.

The Emergency Button

In case I haven’t said it recently, I just love Matthew. Everything about him – his keen sense of humor, his fascination with tools, his unique ability to create an utter mess, and even his dedicated desire to rub my face, cheeks, nose and ears constantly. I even love the fact that I can count on him to hit every emergency button that he comes near.

Today being no exception.

But before we get into today’s emergency button hitting moment, why in godsgreenearth do people insist on putting emergency alarm buttons just 3.5 feet off the ground? And why, OH WHY, do they have to be big shiny red ones? I mean, don’t they just scream “PUSH ME”?  I rest my case.

Matthew started swimming lessons today. His first ever.

No, not just his first swimming lesson ever, but his first lesson of any kind ever.

But with three solid months of preschool under his belt, where I get notes sent home in his backpack that say things like, “Followed directions”, “Cleaned up”, “Transitioned well” and don’t pass out when I say this one, “Cooperative”, you would think that he could handle a 30 minute swimming lesson with only two other children.

Yet, he still finds a way to make it an adventure.

OH Canada!

There is nothing more healing than laughter. And if you are new to reading my blog you will be happy to know that my motto is, "If you can't laugh at my life, you have no sense of humor."

I figured it was only fitting that I use that as the direction for the recap of our Victoria trip.

3 boys, 2 parents, 2 grandparents, 4 days, 2 holidays, 1 hotel, 3 boats, and A LOT of fun.

We were supposed to take the Victoria Clipper -- a high speed shuttle from Seattle directly to Victoria. That is what our tickets were purchased for, and that is where we arrived at 7:00 in the morning Saturday.

The water was rocky, and the wind blew hard. We rushed the boys into the terminal, where Gabriel's autism allowed us the luxury of passing the lines and pre-boarding. But we weren't exactly early, so there were lines that had to quite literally be passed.

As we moved through crowds of people in the terminal, much like an airline terminal, my darling Matthew crashed into the butt of each and every adult waiting near him.

"Oh, sorry." I said, over and over again, grabbing Matthew by his down coat and jerking him from place to place and he giggled with delight. Afterall, it was morning, and he was low. It was my idea to bring him to a room full of strangers and assume that this time, he wouldn't crash into all of them. What was I thinking? Matt was happy, and self-regulating. Try explaining that on the fly to a group of strangers.

Reduced-Stress Easter

Easter is another holiday that causes anxiety for us. Most holidays do because of the unpredictability and lack of routine that each and every holiday brings.

Last year our Easter didn’t go so well, and by the time we found our baskets, Gabriel was having an anger-meltdown. He was so anxious about finding eggs, yet protecting his new found goodies, that I ended up having to take the Easter Bunny treats away, from all of them until we could all settle down a bit.

Which is just a bummer.

And I’d like to avoid that this year.

Here are my tips for a reduced-stress Easter.

Easter Eggs: You don’t have to dye eggs. Really, you don’t have to. You can color them with permanent markers, sticker them, paint them, put those self-adhesive foam stickers on them, or even glue funny faces on them. I don’t like fake dye to begin with, so this is a good way to get out of it! A open - ended activity like gluing or coloring requires less of me; I don't have to be hyper-vigilant over dye. So, be creative – and reduce stress by not having 12 bowls of neon water sitting on your table for your kids to play in. Makes me calmer already.

Easter Clothing: Most people dress their kids up all fancy for Easter. But you don’t have to. If you choose to go the dressy route, make sure your child is wearing child-friendly clothing. Whatever their sensitivities are, don’t try to push them on Easter! Kids already have high anxiety, add a scratchy outfit (or slick new shoes, or itchy tights, etc) and their ability to cope – be flexible and tolerant of the changes – is further diminished. If you need ideas, check out http://www.softclothing.net/ (I would assume you still have time to order too!).

Easter Brunch: Many people go out for a fancy brunch. But, you don't have to. Now, it is only fair to say that this part is my kids' favorite, because a nice brunch at a nice restaurant usually means all the bacon they can eat. But we stopped going a few years back. Why? Because it flat out wasn’t fun. Not for me anyway. I was the one not eating, wrangling kids, taking walks, arguing over pancake temperature (Nick is still crazy picky), all in dress clothes and heels. Not my idea of a good time. We have opted for an at-home brunch the last few years. This has been great – and I’ve even made extra bacon for Gabe and Matt. One of my favorites kid-friendly-at-home-brunch ideas? Try a ‘pancake bar’. Make pancakes, in oval shapes (you don't need a mold, just eye it, and circles are just fine too) and let your kiddos ‘decorate’ the pancakes like eggs --- syrups, fruit, whipped cream, sprinkles, mini-chocolate chips, whatever – go crazy! And all in your house slippers too.

Easter Baskets: This is the major point of contention at our house: hoarding. All of those little treasures mean that Gabriel needs to defend them – which he will with his life if need be. Try doing it a little differently. The Easter Bunny can bring a stuffed animal (easy to carry) or just leave out items to be shared in a family basket– like bubbles, sidewalk chalk, new makers/paints, playdoh, etc. If you want to do the baskets, I suggest two things: 1. Instead of a basket use a bag that they can keep, and ruin if need be. I found mine at the Disney store this year for $1. Try the Dollar Store, or grocery store for reusable and inexpensive bags. And 2. LIMIT what you put in them. Kids love new stuff – but they don’t need 100 things in their basket! A cool new car, and some stickers is enough to make my kids happy. It is ME that needs to remember not to overdo it. And for me, spending less money and buying less crap is definitely stress-reducing.

Easter Basket Goodies: I highly suggest NOT putting in candy – or at least LIMIT the candy. My rule of thumb is to put something in their baskets for them to eat later (chocolate bunny, very small) and something in that they can eat now (gummy fruits, animal crackers, or Annie’s chocolate bunny crackers). My boys want to eat whatever they find – and most likely it is 7am when they find it, so I care what they get.

Also make sure you are filling their basket with things that your kids will use – I simply cannot stand buying a bunch of crap and then watching it all get broken and tossed within hours. For ideas on what you can put in their baskets that will BENEFIT them in some way (social, emotional, small motor skills, sensory, etc) check out my 101 Stocking Stuffers list here. And the best part of putting things in their basket that they will actually USE? It keeps them busy. Oh, and my favorite item to add? A spring themed kids' DVD -- a built in way to transition to quiet time when they are wound up. Perfect.

Keep It Simple: Often we as adults like lots of pomp and circumstance with our holidays. But, our kiddos, they’d really prefer a dose of good old fashioned calm-predictability. Make sure you plan what you are going to do, even write out a visual schedule for you kiddo, and stick to it. You don’t have to go to 10 different places and hunt eggs at no less than two churches and three houses in order for Easter to be deemed a success. Why not just hold a simple egg hunt at home, and then let the kids make pancakes? Easy for everyone. And less stress too.

_________________

If anyone has other good tips, please leave them in the comments below!

I am following the list above this year, with one exception. We are going to Victoria Canada by boat for the holiday. You might cringe at the idea of exchanging holiday stress for vacation stress, but the boys are pretty good travelers. And being out of town means that everything is scaled down (no family gatherings, no crazy egg hunts) – and I don’t have to cook. Bonus.

Oh, and to make sure the kids survive at the restaurant (first time in about 2-3 years) I got them Kids' Night Out Bing from Knock Knock -- see it and buy it here. I have to say, I LOVED most of their products -- which I got to browse at one of those stores that is full of breakable things that you would never let your kid into...yeah...one of those...alone yesterday while my mom had all three kids. My mom rocks.

See ya later Peeps!
H

Photo: My boys and my niece, a few years back, on one of our dressy-clothes-overscheduled-fancy restaurant Easters. Look how little they are. Awww.

The Land of Happy

After Gabriel lost it over homework last night, throwing his paper and breaking the dry erase markers, I was already angry that my husband was in Dallas for the night. Out to dinner with colleagues, having steak at a high end restaurant.

Then Nick was angry with me, because I was frustrated with Gabe. And he screamed at me. A LOUD I want your attention scream. Which is very unlike him.

I took a deep breath, and we started bedtime early.

But Matt wasn't having it. He was running around, literally, which is not like him either. He was bright red from all the running and was insisting that he get to play 'jokes' with Nick. Which, in case you are wondering, means he wants to trick Nick, hide from Nick, squirt toothpaste on him (which he did, and all over the carpet in my room), or put ice cubes down his back. Brothers.

I am chasing Matt like a crazy woman, holding him down, forcing him under the heavy blanket and trying to figure out what "I need the grey thing" means. Turns out it is a train track that his father glued back together for him. *sigh*

Finally when all three boys are sitting in bed ready to read, and things begin to calm down, and my animosity for my husband in the hotel lobby having a drink starts to subside, we read this poem by Shel Silverstein:

THE LAND OF HAPPY

Have you been to The Land of Happy,
Where everyone's happy all day.
Where they joke and they sing
Of the happiest things,
And everything jolly and gay?
There's no one unhappy in Happy,
I have been to The Land of Happy---
What a bore!

And I laughed out loud. That Shel Silverstein is a genius.

Because really, my happy is in the not-so-happy that I have every day.

And the one thing I am sure you could not call my life, is a BORE!

Hope your weekend is not-Happy,
H

Photo: Shel Silverstein's famous "Where the Sidewalk Ends" illustration.

Even MORE ways you know you have an SPD kiddo…

1. You have a collection of twisty straws that should be sold to a toy museum (even though they still have applesauce stuck in them)

2. You still buy Velcro shoes for your 8 year old because he has to continually tighten his shoes all day and doesn’t have the small motor skills to tie them

3. You go through a new toothbrush every week not because they are being used to brush teeth, but because they are used as a chew toy (instead of the real chew toys you have spent hundreds on!)

4. You know that OT doesn’t mean Over Time

5. You have lists of new therapies you want to try, but no extra time, energy or money to actually do them

6. You know what a “no thank you bite” is

7. You are constantly reminding your kid through gritted teeth at the grocery store to “keep your hands in your pockets!" but he still touches everything

8. You have researched every school within driving distance of your home (and some too far away to realistically be considered) in an attempt to avoid having to shove your “square peg” kid into the “round hole” of public schooling

9. You’ve considered homeschooling – and maybe even attempted it

10. You are an expert at finding seams in clothing

11. Your child refuses to wear a coat – even though it is below freezing outside -- but you are OK with it

12. You have attempted to explain the definition of proprioception to at least ten family members, all of which still don’t get it

13. Your child doesn’t eat sitting down; no, he has to stand, dance, jump, spin and bounce during dinner – and you’ve learned to live with it!

14. You have long since thrown out the darling dresses and adorable bows you once thought your daughter would wear, since she’ll only wear sweatpants

15. You spend your spare time looking up things like CAPD and NVLD

16. You know what CAPD and NVLD stand for

17. When you tell your child it is time to “brush” you aren’t talking about his teeth

18. Bath time is a war zone – either your kid is attempting to become one with the water or refuses to get wet all together

19. You talk about “engines” all day long but know nothing about cars

20. If you could just convince your kindergartner to ASK the other kids not to sit too close, you would stop getting calls from his teacher about him pushing, hitting and kicking

21. You are tired of explaining that your child does not have “behavior issues”, but rather sensory issues that affect his behavior

22. You know, unlike most of those “helpful” strangers that give you unsolicited advice, that if you child could do better, he would

23. You have joined SensoryPlanet.com and finally realize you are NOT alone

24. You follow Dr. Lucy Jane Miller’s DSM updates with greater interest than current affairs, movie releases or fashion trends

25. You STILL haven’t had any time alone

26. You spent more time planning for your child’s 504 meeting (because they don’t qualify for IEP with just SPD), than you did your own wedding

27. You aren’t on Facebook to connect with lost high school friends as you originally intended

28. You wouldn’t tell anyone this, but your 6 year old (or 7, or 8, or …) still sucks a pacifier or his thumb at night to go to sleep

29. You have an ear-marked copy of The Out-of-Sync Child on your nightstand at the ready for late-night epiphanies

30. You dread taking your child to the dentist more than paying your taxes

31. You know that Sensory Diet has nothing to do with eating and is probably the most important ‘diet’ you'll ever do

32. You can name 100 things your child can do for heavy work at school, but are surprised that the teacher can’t remember even one

33. Unlike other kids, your child actually acts better when he has a fever

34. You used to browse the newest bags at Coach.com but now you spend more time “dreaming” over the latest from Southpawenterprises.com

35. You have still yet to come up with a quick response as to what is going on with your child

36. You have quit your job to stay home and take care of your child’s ever-increasing needs (and appointments) even though you can't afford to

37. Your insurance co-pays are more per month than your property taxes

38. You are no longer surprised when your child greets someone by crashing into them full force

39. You hear other women talk about the next Twilight movie, but you are just hoping for a
sequel to Autistic Like: Graham’s Story

40. You beam with pride when your child asks to be squeezed or chooses to swing without being told